My sweet little nephew passed away yesterday from complications with Evan's Syndrome, a very rare autoimmune disease. He was only 21 months old. For the past seven months his body attacked his own platelets and neurtraphils, and just recently his red blood cells. He was hospitalized last week with a high fever, heart rate, and listlessness. His health quickly and unexpectedly declined.
Lucas stopped breathing in the night on Monday and was put on a breathing machine. The low platelet count (1) caused over 100 bleeds in his brain. Doctors tried to relieve pressure, but one of the large bleeds was too close to his brain stem. Lucas never woke up. On April 25, 2013, all his family gathered and sang to him while his 3-week old baby brother laid in the crook of his arm. A short while later his loving parents held him as they removed life support and he peacefully passed. Lucas' kidneys were donated and we are so happy for the family that will have more time with their loved one.
We are at peace in knowing that he is made whole and with God again. We are praying for continued peace in the hours and days to come. Peace “which passeth all understanding” from the Lord, who promised, “I will not leave you comfortless: I will come to you. … Peace I leave with you, my peace I give unto you: not as the world giveth, give I unto you. Let not your heart be troubled, neither let it be afraid” (Philippians 4:7; John 14:18, 27).
I am starting the Love for Lucas campaign to honor this Sweet Boy.
Some dear friends of mine made pledges of things they were going to do to honor Lucas. Ideas include: take your kids for a walk, find joy in the little (and unpleasant) things, be more patient, show kindness to a stranger, whatever you feel inspired to do in Lucas' name!
I pledge to show my Love for Lucas by taking more time to get down on the floor and play with my kids and speaking more softly.
Eventually I would like to make a book for my sister and brother-in-law documenting all the
Love for Lucas pledges, showing the impact his short life has made. Please leave a comment here or on the facebook page of what you will do to honor him.
Let's overwhelm his parents with love and support.
I thank you from the bottom of my heart!
{I sent this picture of Lukie and I snuggling to my sister when she was
at the hospital having Levi a few weeks ago}
We love you Lukie Luke! I am so grateful for the day I got to have you in my home when Levi was born. Til we meet again at Jesus' feet. I carry your heart in mine.
With Love,
Auntie Kerstin













